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Hannah's Info Sheet

  • Print one out!
    This is a great guide to preventing, recognizing, and treating Plagiocephaly. It is a simple one page overview of the most important things about plagio that EVERYONE should know! Please pass it along to your friends, family, pediatrician, etc. Our local Early Intervention office was very happy to have these! You are more than welcome to use this as a guide to making your own--it's very helpful to keep in the diaper bag for the many people who ask about the helmet.

Hannah in the Media

  • Hannah in Cranial Tech's 2004 DOCband Calendar
    Check out my Miss July 2004! You can see the entire new 2005 calendar on Cranial Technologies' website!
  • AZ Fox News Story
    MPG file from a news story aired on an Arizona's Fox 10 News channel about Cranial Technologies' role in the separation of the Egyptian twins who were once joined at the head. Hannah's picture makes a brief appearance towards the end of this video!
  • Newspaper Article
    This front page article on Hannah's Story ran in our local newspaper.

Plagiocephaly Prevention

  • ~Limit use of swings, bouncy seats, car seats, etc. Try a carrier that allows you to "wear" baby instead.
  • ~Use a memory foam sleep positioner to alternate which way baby's head is turned while still backsleeping.
  • ~Rotate placement of toys in the crib, carseat, stroller, and during floor play time.
  • ~When bottle feeding, be sure to alternate which side you hold your baby on during feedings
  • ~Provide lots of supervised tummy time from birth.
  • ~Alternate the end you place your baby's head at in the crib and on the changing table

Torticollis

  • Many babies who develop plagio have neck tightness, or Torticollis, which makes repositioning very difficult. These babies may need physical therapy or neck stretching exercises.

Favorite Plagiocephaly Links

  • Plagiocephaly.org
    A great website with info on everything plagio related--from prevention to treatment and everything in between.
  • Cranial Technologies
    Makers of Hannah's DOCbands. Their website has a fabulous Tummy Time Brochure and tons of research and information, including a parents area with discussion board.
  • CAPPSkids
    Cranioysynostosis And Positional Plagiocephaly Support
  • Yahoo! Groups : Plagiocephaly
    An online community of about 3,500 members! This is a parent run site designed to help parents identify and avoid plagio, as well as support in repositioning, banding, and fighting isurance for coverage! This is the best place to get any plagio related question answered!

About Treatment

  • Early diagnosis is the key to treating plagiocephaly. For mild to moderate cases, a trial of aggressive repositioning is recommended first. If after a few weeks the desired results are not accomplished, helmet therapy is often recommended. The best correction is achieved in babies younger than 6 months when the skull is still very soft and growing rapidly, and most helmet providers only treat until age 18 months. Helmets are custom made to a rounded version of your baby’s head and are generally worn 23 hours a day for 3-4 months. It does not hurt the child or pose any risk to proper brain growth and development.

Hannah's Plagio Pals

Plagiocephaly Merchandise

  • Precious Bambino
    Plagiocephaly Gifts, T-Shirts, Mugs & Plagio Wear! Sayings like "Banded Beauty, Helmet Laws Stink, Under Construction," and Graduation T-Shirts!

Plagio & Cranio Webring

« August 2005- One Year After Graduation | Main | January 2007- Welcome Baby Jack! »

October 2006- Big Sister Hannah!

Hannah is almost 4 years old now and doing great.  She is way ahead of where she should be for her age in most everything and is just incredibly smart.  We can certainly say having plagio as a baby didn't cause her any long term issues!  Her head hasn't changed at all since the last update I posted and I'm sure it never will, but because she has thick and curly hair you don't notice the flatness unless it's wet.  The only issues we've encountered are finding a properly fitting bicycle helmet and sunglasses for her.

In January, Hannah will be a big sister!  She is very excited about the pending arrival of her little brother.  We've had some issues with this pregnancy and have therefore already had seven ultrasounds, where we've definitely confirmed that it is indeed a boy and that he is indeed head down and very low.  This is exactly what we were told about Hannah during her ultrasounds and what we figured caused her misshapen head.  We're hoping for a round little newborn head this time, but I'm honestly not concerned in the least.  I will just be greatful for a healthy baby, flat head or not.  We know and will faithfully use all the repositioning strategies, and if needed we'll get him a helmet.  We've been there and done that and it's nice to know it's no big deal.  While it would be nice not to have to use Cranial Technologies' services this time, it's very comforting to know they're there if we need them!

Update 1/1/07:  I've had lots of emails asking if the baby has arrived yet and if I'll post about it when he does.  No baby yet, and yes I will definitely post the news of his arrival.  Thanks as usual for all the email comments and well wishes from everyone!

Comments

Sarah,
You all are in my thoughts and prayers as the big day is near. I know Hannah will be the best big sister ever. God bless all of you.

Thanks so much for your site. It is the best personal site about plagiocephaly I've seen. I keep coming back to yours even as I find others. You did such a great job and it is encouraging for me, as a mom of a three month old just diagnosed with moderate plagiocephaly. Thanks and best of luck with the new baby.

My grandson (11 months old) is wearing the cranial band, and I am trying to find sunglasses for him. Were you able to find them for Hannah when she was that age?

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