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Hannah's Info Sheet

  • Print one out!
    This is a great guide to preventing, recognizing, and treating Plagiocephaly. It is a simple one page overview of the most important things about plagio that EVERYONE should know! Please pass it along to your friends, family, pediatrician, etc. Our local Early Intervention office was very happy to have these! You are more than welcome to use this as a guide to making your own--it's very helpful to keep in the diaper bag for the many people who ask about the helmet.

Hannah in the Media

  • Hannah in Cranial Tech's 2004 DOCband Calendar
    Check out my Miss July 2004! You can see the entire new 2005 calendar on Cranial Technologies' website!
  • AZ Fox News Story
    MPG file from a news story aired on an Arizona's Fox 10 News channel about Cranial Technologies' role in the separation of the Egyptian twins who were once joined at the head. Hannah's picture makes a brief appearance towards the end of this video!
  • Newspaper Article
    This front page article on Hannah's Story ran in our local newspaper.

Plagiocephaly Prevention

  • ~Limit use of swings, bouncy seats, car seats, etc. Try a carrier that allows you to "wear" baby instead.
  • ~Use a memory foam sleep positioner to alternate which way baby's head is turned while still backsleeping.
  • ~Rotate placement of toys in the crib, carseat, stroller, and during floor play time.
  • ~When bottle feeding, be sure to alternate which side you hold your baby on during feedings
  • ~Provide lots of supervised tummy time from birth.
  • ~Alternate the end you place your baby's head at in the crib and on the changing table

Torticollis

  • Many babies who develop plagio have neck tightness, or Torticollis, which makes repositioning very difficult. These babies may need physical therapy or neck stretching exercises.

Favorite Plagiocephaly Links

  • Plagiocephaly.org
    A great website with info on everything plagio related--from prevention to treatment and everything in between.
  • Cranial Technologies
    Makers of Hannah's DOCbands. Their website has a fabulous Tummy Time Brochure and tons of research and information, including a parents area with discussion board.
  • CAPPSkids
    Cranioysynostosis And Positional Plagiocephaly Support
  • Yahoo! Groups : Plagiocephaly
    An online community of about 3,500 members! This is a parent run site designed to help parents identify and avoid plagio, as well as support in repositioning, banding, and fighting isurance for coverage! This is the best place to get any plagio related question answered!

About Treatment

  • Early diagnosis is the key to treating plagiocephaly. For mild to moderate cases, a trial of aggressive repositioning is recommended first. If after a few weeks the desired results are not accomplished, helmet therapy is often recommended. The best correction is achieved in babies younger than 6 months when the skull is still very soft and growing rapidly, and most helmet providers only treat until age 18 months. Helmets are custom made to a rounded version of your baby’s head and are generally worn 23 hours a day for 3-4 months. It does not hurt the child or pose any risk to proper brain growth and development.

Hannah's Plagio Pals

Plagiocephaly Merchandise

  • Precious Bambino
    Plagiocephaly Gifts, T-Shirts, Mugs & Plagio Wear! Sayings like "Banded Beauty, Helmet Laws Stink, Under Construction," and Graduation T-Shirts!

Plagio & Cranio Webring

« March 2007 - Jack's Referral & Specialist Visit | Main | July 2007- Amazing Progress! »

May 2007 - Jack is Banded

Tufts finally approved our claim and Jack was casted at three months old.  I was really surprised how much you could see his tilt in the before pictures that Cranial Tech took of him.  A week later we picked up Jack's band and began his road to a rounder head!

The first week was a bit rocky with some red spot issues.  He seems to have more sensitive skin than Hannah did.  After and adjustment and some hydrocortisone cream things seem to be much better.

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Comments

Hi...I am so glad I found your page. My daughter had been diagosed with cranio & plagio. We actually also go to Children's in Boston and see Dr. Proctor & Dr. Rogers. We have our first appt with Hanger next week. Could you please e-mail me. I have so many questions. THANK YOU!!!

Posted by: Marta | June 02, 2007 at 12:46 AM

Jack looks so happy! :)

Posted by: Jodi | July 02, 2007 at 11:43 PM

Jack looks so happy! :)

Posted by: Jodi | July 02, 2007 at 11:44 PM

Jack looks so happy! :)

Posted by: Jodi | July 02, 2007 at 11:46 PM

Hey from Australia!

Jack is gorgeous (and so is Hannah) my daughter was referred to a clinic to have a band last week and I'm amazed at how many people have said how they adapt to the banding very quickly. She is almost 9 months (so a little of a late starter) and I'm scared of the unknown.. if that makes any sence??? I'm worried that she will be incomfortable in it!

I'm still new at all this helmet talk so I was very relieved to see Hannah looking great and Jack's on his way of having a great head too....

Thank you for sharing your knowledge with the world - it's very comforting to see!

Big Hugs to you..

Cathy =o)

Posted by: Cathy | July 25, 2007 at 10:39 PM

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