My Photo

Hannah's Info Sheet

  • Print one out!
    This is a great guide to preventing, recognizing, and treating Plagiocephaly. It is a simple one page overview of the most important things about plagio that EVERYONE should know! Please pass it along to your friends, family, pediatrician, etc. Our local Early Intervention office was very happy to have these! You are more than welcome to use this as a guide to making your own--it's very helpful to keep in the diaper bag for the many people who ask about the helmet.

Hannah in the Media

  • Hannah in Cranial Tech's 2004 DOCband Calendar
    Check out my Miss July 2004! You can see the entire new 2005 calendar on Cranial Technologies' website!
  • AZ Fox News Story
    MPG file from a news story aired on an Arizona's Fox 10 News channel about Cranial Technologies' role in the separation of the Egyptian twins who were once joined at the head. Hannah's picture makes a brief appearance towards the end of this video!
  • Newspaper Article
    This front page article on Hannah's Story ran in our local newspaper.

Plagiocephaly Prevention

  • ~Limit use of swings, bouncy seats, car seats, etc. Try a carrier that allows you to "wear" baby instead.
  • ~Use a memory foam sleep positioner to alternate which way baby's head is turned while still backsleeping.
  • ~Rotate placement of toys in the crib, carseat, stroller, and during floor play time.
  • ~When bottle feeding, be sure to alternate which side you hold your baby on during feedings
  • ~Provide lots of supervised tummy time from birth.
  • ~Alternate the end you place your baby's head at in the crib and on the changing table

Torticollis

  • Many babies who develop plagio have neck tightness, or Torticollis, which makes repositioning very difficult. These babies may need physical therapy or neck stretching exercises.

Favorite Plagiocephaly Links

  • Plagiocephaly.org
    A great website with info on everything plagio related--from prevention to treatment and everything in between.
  • Cranial Technologies
    Makers of Hannah's DOCbands. Their website has a fabulous Tummy Time Brochure and tons of research and information, including a parents area with discussion board.
  • CAPPSkids
    Cranioysynostosis And Positional Plagiocephaly Support
  • Yahoo! Groups : Plagiocephaly
    An online community of about 3,500 members! This is a parent run site designed to help parents identify and avoid plagio, as well as support in repositioning, banding, and fighting isurance for coverage! This is the best place to get any plagio related question answered!

About Treatment

  • Early diagnosis is the key to treating plagiocephaly. For mild to moderate cases, a trial of aggressive repositioning is recommended first. If after a few weeks the desired results are not accomplished, helmet therapy is often recommended. The best correction is achieved in babies younger than 6 months when the skull is still very soft and growing rapidly, and most helmet providers only treat until age 18 months. Helmets are custom made to a rounded version of your baby’s head and are generally worn 23 hours a day for 3-4 months. It does not hurt the child or pose any risk to proper brain growth and development.

Hannah's Plagio Pals

Plagiocephaly Merchandise

  • Precious Bambino
    Plagiocephaly Gifts, T-Shirts, Mugs & Plagio Wear! Sayings like "Banded Beauty, Helmet Laws Stink, Under Construction," and Graduation T-Shirts!

Plagio & Cranio Webring

« May 2007 - Jack is Banded | Main

July 2007- Amazing Progress!

Jack grew at an incredible rate in his band, so fast that he outgrew it in only six weeks.  This is actually a good thing, as that growth all happened right where we needed it.  In that six weeks Jack's asymmetry improved from 21mm to just 7mm!  That is over 2mm of correction a week!!!  Simply incredible!  Because the band was outgrown so quickly, and we had a couple weeks wait to get in with Dr. Rogers, Jack was out of a band for a couple weeks.  Dr. Rogers said he'd like to see him banded for another few weeks and Cranial Tech did recommend another band, so we decided to go for it.  Jack was casted again and will receive his second band on August 1st. 

Click on the picture below to see the progress--top row is before, bottom row is after five weeks of treatment.  We were especially pleased with how much the "dent" above his ear improved as well.

Collage2

Comments

This is a well-written documentary about your journey! Thank you for bringing this issue to the forefront to benefit many children in the years to come.

Mary Geissler
Family Living Educator

This is a great article. My baby Ethan's head is off 10 mm on one side. He is 4.5 month old. I took him to a Orthotist on Friday 11/16/07 and decided to get the Band for him. The insurance company (UnitedHealth) will require a pre-appeal letter from the pediatrian, which the Orthotist said she will help out on Monday. I hope everything goes well, my journey is about to start. Thanks for the Yahoo link group. That will help alot.

This is a really well-written and documented site.

My son (about Jack's age -- he was born October 2006) was diagnosed with plagiocephaly and has since undergone treatment with a DOC band (and had GREAT results). When he was initially diagnosed, I happened upon your site and it gave me a lot of inside information from a parent's perspective. Thank you -- it was informative and comforting.

THANK YOU so much for Hannah's page. I noticed my son's mishapen head early on and people told me I was just being a typical first-time mom, but I knew better. Now at almost 7 months, I feel we have wasted precious time in correcting my son's head. Your blog has taught me a great deal and prepared me for my son's treatment. I just received his referral today and will take him to the doctor ASAP. I do not want more time to elapse before he can be be fitted for a helmet. I am worried about how he will react to wearing it, but I know it is for the best and will do what I must to have it corrected. Again, thank you and I wish you, Hannah and the rest of the family WELL! GOD BLESS!

We had some problem with our child fifteen years ago. Like you, pediatrician said not to worry...it would correct itself. It didn't. Child slept mostly on back bcs of SIDS scare. We were first time parents... Fortunatley, son has thick curly hair, but I cringe when I think of the day he may go bald. It makes me sick that we did not look into some kind of treatment, but listened to our doc.

Post a comment

If you have a TypeKey or TypePad account, please Sign In